Quality of Life


Angel holding bunny

I write this to honour a young man I once had the privilege of working with. He was confined to a wheelchair and spent his days alternately in his chair or laying in bed. He could not see well as he was partially blind. He also could not speak much and only uttered two words that made sense: “mama” and “No”. Mostly he uttered guttural sounds, but oh my, he could laugh. I remember describing him to friends of ours and the first thing they asked was, “what kind of quality of life is that?” And they felt sorry for him. Yet it was this young man who taught me much about what ‘quality of life’ really means.

No, he couldn’t walk and his limitations were severe and many. He could move his legs and one arm, and he could turn his head to a limited degree. He also had a feeding tube in his stomach through which he was given nourishment – liquid ‘meals’. I had been asked if I would come work with him as his usual care giver was going off on leave. I was scared. I didn’t think I could do it. I had never done this sort of work before and didn’t think it was a good fit, but his mother encouraged me and, in the end, I agreed to try. It has been a blessing that has had reverberations in my life.

Here is what J. taught me: He taught me there are many ways to communicate without ever speaking a word. He taught me patience. He taught me grace, endurance, forgiveness, and so much more. He taught me what real love looks like.

I would arrive in the early morning and he would be laying awake waiting for me. I would bend over and whisper good morning in his ear. He’d smile. He always smiled.

After the morning routine of bathing, dressing, and breakfast was done I would sit beside his bed and read stories to him. Sometimes I sang songs, he seemed to enjoy that. He also enjoyed games I made up as we exercised his limbs so the muscles would not atrophy. He laughed a lot. It was gratifying to hear him laugh, and when he would turn his head at the sound of my voice and smile his beautiful smile.

He loved it when his little brother, a toddler at the time, was placed on his lap. The little guy was very curious about this big brother and would often hug him and caress his face. J loved that. At other times though, he would slap J or inadvertently hurt him in some way. J would cry, deeply hurt by his little brother’s actions. But he never had the smallest inclination to strike back – he had no desire for revenge. He simply expressed his hurt and pain through tears. J never seemed to get angry – it was just not part of his makeup or personality. Thankfully these occasions were few and far between.

I worked with J for a little over a month, but the time spent with him was overall a joyous experience. He was endlessly patient with my fumbling in the early days and I came to look forward to my time with him. It was a time of great learning, on my part. And it was a time filled with grace, peace, and goodwill. J has many blessings to share with the world, and I am grateful to have had the opportunity to experience the benedictions he imparted.

 

 

Cold winter day


winter

It’s a cold winter day – the kind of day when I just want to curl up and go back to sleep. Christmas with its bright lights and good will has come and gone and we are left with frigid January. Guess you can tell I am not exactly a fan of winter. The onslaught of cabin fever has already begun and there are several weeks left to winter. I am antsy – I just want to go on long walks! We buried my brother less than two months ago, perhaps that is why I am finding this particular winter more difficult than most. I have less patience for trivial matters, less patience too for small details which once seemed important.

My mother taught me that death is part of life. She also taught me that it’s okay to cry when you’re grieving someone you love. But as usual my tears are frozen deep inside. They are keeping my anger company.  Anger, I know, is simply part and parcel of the grieving process.  Grief, unfortunately, does not have a cut and dried timetable.  I wish it did. The problem this time round is that my brother did not simply die; he was killed by an impaired driver. That makes it harder to come to terms with his death.  Recently I took part in a conference call with the crown prosecutor who is handling the case. I know the year ahead will be filled with waiting for court dates and wrestling with the roller coaster of emotions that entails.

I am reaching deeper in an attempt to find some blessing or a positive message to tell myself. And this is it: winter gives me more time to sit and ruminate, time to reflect, and hopefully grow on a personal level.  I have no idea what this “lesson” is here to teach me, but I hope I will learn it well and become a better person through the process.